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A week ago this past Friday I had to have a spinal tap done (just part of a laundry list of tests my neurologist is having done to make sure I’m on the right meds)… Well of course the 1st day I was supposed to stay on my back and only get up to go potty. Well, even beginning the 1st day I developed the most excruciating headaches I have ever felt in my life any time I was not laying down… that lasted for about a week (til I went back to the hospital to have them ‘fix’ me)…. Anyway… My H was there for me the entire time. We have 2 kids under 2 and he took care of both of them by himself (unless he had to be at work at which times my BFF or Mom would come help)… He kept up with the house work (relatively well…hehehe..I’m OCD so relative to me is probably normal) Helped me up every time I had to get up for whatever reason… made sure I had something to eat (whatever I wanted) any time I was hungry… Once when he brought me dinner he had made a card with roses that said “I love you”… if I was confined to the bedroom (as opposed to the couch in the living room) he would bring the kids in to visit and brought them to me for the milk/books/songs/prayers/bed routine every night cuz he knew how much I was missing them. Well…. before he began recovery, all of this would have surely sent him to his compulsive, acting out ways…. He did not do anything he “wasn’t supposed to do” even once! What a miracle this was/is to me… when he needed emotional support… he came to me rather than his old “girls” on the computer. And He told me that for the first time since starting recovery he really felt proud of himself! So I just wanted to share this with you all. Bravo for my SA who is proving IT CAN BE DONE… This addiction CAN BE CONQUERED! And our marriage can be healed. Its still the beginning and we still have a long way to go… but this certainly gives me a bit of the hope back that I had lost some time ago
NataleHThanks for posting this story, NataleH. You deserve the best. i’m sure you always would have done the same for him if he needed you. it is only right that he’s stepping up and doing right by you. i’m glad you feel hopeful and also glad that you seem to recognize it is a long road and he needs to prove himself to you for the long run. i pray your healing is going well.
Sounds like you had a rough week so good for him! Glad you were taken care of and were in a place of safety while you were healing.
It is a wonderful relief to know your husband offered you support and was a good father to your children while you were recovering. We rejoice with you!
There is nothing wrong in celebrating the small steps toward having a faithful and caring partner. As long as you are both moving in the right direction—the hope for your future together is always alive. I know we all sincerely want him to succeed and you to be treated with the love and respect you deserve all the time.
And I hope you’re feeling better and the meds are straightened out.I am so glad he was good and kind Natale. I always take these accomplishments and know that no matter what happens, it proves he can be good and that gives me hope for my kids` relationship with their father. I hope you are feeling much better.
Wow. What a week you have had?? Headaches from a spinal tap are really painful. Glad to hear you are recovering and your H is helping you. Karen xx
Nataleh,
I’m so glad that your SAH has been there for you.
Just curious – what neurological issue are you dealing with? Sounds really taxing. I hope you are feeling better…
Deb
How generous to share this great news with us while you have so much to manage. I sure hope you are 100% better soon.
How generous to share this great news with us while you have so much to manage. I sure hope you are 100% better soon.
Natale,
This is such a wonderful post!!! Thank you so much for sharing! And it is so good to hear that your husband was there for you all along the way.
I am curious as well about your medical condition. I had brain surgery a year ago April for Chiari Malformation (which no one ever seems to know much about). But anyway – I had a great Neurologist at UCLA. And I can tell you that I understand about horrible headaches. So if you need any support on that front, I am here for you.
Big Hugs, and hoping that there is a healthy road ahead for you. 🙂
Gabby
i love the fact, that you are being loved. and have reason to hope. it’s great to hear some positive news, and as with anything, we must sometimes take it day by, and rejoice in the little things. i hope you are getting better.
That is such great news!
My goodness, what a terrible thing to have to go through.
It’s times like this that we feel so grateful for the extra help and caring (even if the dishwasher isn’t loaded correctly!).
Best wishes on your health and your SA.
Much love, Claire
Nataleh,
it is so great that you are seeing improvements in your sah’s treatment of you because of the steps he is taking toward recovery. it is good for our minds and bodies to experience positivity in the family, good for everyone. it raises the bar to a new level. i’m glad that your sah is making these efforts for you, you deserve nothing less!
Nataleh – So sorry you had to go through so much. Those headaches are gruesome. I am happy to hear your h was there for you. It is so nice to hear some positives once in a while. I am sure that meant so much to you.
SharronThank you all for your cheers and support! It is so nice that my SAH and myself are getting such positive feedback from my sisters!
To answer your questions about my condition…. I was diagnosed with Multiple Sclerosis 5 years ago. I was seeing a wonderful doctor (while I was working as a paralegal and had GOOD insurance) then my condition became so severe that my 8 year old daughter (at the time this happened I was not married) had to help me dress and had to help feed me. I had tremors so bad that I could not write, type, dial a phone, cook, cut food, could only eat certain things by myself, could not shave, could only wear certain clothes if no one was around to button, tie, zip… for me. So, obviously I had to go on disability (which I am still on… I have tried to return to working in an office but I could not handle it cuz I couldn’t take breaks whenever I needed, control the temp (I have a low heat tolerance and cannot function if I get too hot… pretty ironic that I live in FL huh!?). So I lost my insurance and had to go on Medicaid and as a result was not getting good medical care at all. My tremors turned int seizures… I was so over-medicated that I have about a year of ‘walking amnesia’… I still have periods of my life during that time that I have absolutely NO memory of. By this time I had met and married my SAH and he struggled ALOT with what I was going thru. He had done a ton of research on MS before we even went on our first date becuz he knew I had it… and accepted me, disability and all. Well, once I married him I was able to get good insurance again, but my previous doctor was no longer taking on any ‘new’ patients cuz he was dealing with a cancer diagnosis, treatment, etc. Eventually my H and I decided to have a baby (still was unaware of the addiction)… so I weaned off my meds and began trying to get pregnant… and happily did about 6 months later. Well, 6 weeks after I delivered Matty (emergency c-section) I suprisingly became pregnant with our son. Once Gabe was born I began my search for a new neurologist, one that was well versed in MS. I began seeing her recently so she had to start from square one… sent me thru tons of tests, obtained all my old records, etc. Now we are not sure I have MS at all, and could possibly have transverse myalitis. She explained that my symptoms would be pretty much the same as with MS but the treatment would be different. And if I do have TM then it has caused permanent damage and I will be dealing with the symptoms for ever but that she will be doing everything she can to manage them.
I have my appnt with her on Thurs to get the results of all of these tests and to see where we will go from there. I will keep you guys posted as to what I learn.
Love – NataleWow Natale. Just wow. Your strength and resiliency are amazing. I am so honored to call you sister.
Love,
DaisyHi again,
Just wanting to add my support to your struggle for help and good health care. thanks so much for sharing your story, and I hope you get the best possible result from your doctor. May you find strength for each day and love to spare.
big hug (but gentle)
D.oh… p.s. I wanted to add that I was a dancer (ballet and jazz) for most of my life and one of the things I lost because of the neurologic issues was balance. When I was pregnant (for like two freakin years…lol) it came back… (apparently with MS when you are pregnant you actually get to live symptom free… and this is actually true, but then when the symptoms come back.. they all come flooding back similar to a dam breaking). Until I had the spinal tap my balance hadn’t really been too bad since Gabe was born (and yes I had my tubes tied after him cuz pregnancies are really hard on me and he and I almost both died… if I had gone into hard labor – did go into labor- before the scheduled c-section we would have… so no it is not an option for me to just stay preggers all the time…LOL) Anyway… since the spinal tap my balance has been terrible and I have been stumbling A LOT and ending up with bruises all over my legs. Regardless… as someone who always loved dancing (and was really really good at it… when I was 15 I was asked to join a professional dance company… I chose the life of a teen – a toubled one at that – instead)… this has been one of the hardest things to deal with about my disease… but I have and will continue to find new ‘loves’ that I am at least close to equally as tallented at.
Any suggestions for hobbies or whatever any of you have found that you really enjoy doing AND helps you heal would be greatly appreciated.
Love – Natale (sorry this all was not intended to be so long winded! )Dear Natale,
You have certainly had some very heavy crosses to bear. I am surprised you are still able to get out of bed…let alone deal with this as well. I salute you but “get some rest!” 😉
Karen xxNatale,
It never ceases to amaze me to hear the incredible stories of women such as yourself, who have endured so many challenges and yet have remained amazingly positive and strong. That being said, I agree with Karen that you need to get some rest! 🙂
I am keeping extra good thoughts for you that the best possible results come from the tests.
Much Love,
Gabby
Natale,
You are truly an inspiration. You have such a positive attitude. Thanks for reminding me to try and be more positive about my life. You do sound like you’re looking for something to do. I like hobbies myself. I like doing needle work when watching tv. I love stained glass although it is very messy and expensive.I have to say though I have made a fortune @ flea markets selling small items made from all my scrap glass. It helps cover the cost of the big items. I also make all my shampoo, conditioner, creams, body butters and have been for 30 years. My newest thing is mineral makeup. I absolutely love it. The colours are amazing. It’s very easy to do. An eyeshadow takes 3 seconds. It is dusty. I feel like pitching a tent in my living room when I’m doing all the batches @the same time. I’ll leave a link as it’s just interesting to look at all the stuff. I don’t wear a lot of it but my friends are happy about it. I can spend hours on Pinterest. The DIY/Craft section is great. Please take care of yourself and let us know how you’re doing.
http://www.tkbtrading.com/
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